Informing the development of the Canadian Neurodiversity Platform: What is important to parents of children with neurodevelopmental disabilities?
(2022) 🔓 “A crowd-sourced Canadian platform that collects information across neurodevelopmental disabilities (NDDs) can (1) facilitate knowledge mobilization; (2) provide epidemiological data that can benefit knowledge, treatment, and advocacy; and (3) inform policy and resource allocation decisions.”
ENabling VISions and Growing Expectations (ENVISAGE): Parent reviewers’ perspectives of a co-designed program to support parents raising a child with an early-onset neurodevelopmental disability
(2022) “This study reports parents’ perspectives of, ENVISAGE: ENabling VISions And Growing Expectations. ENVISAGE – co-designed by parents and researchers – is an early intervention program for parents raising children with neurodisability.”